I know it has been too long. This winter I will start back with the blog and make more effort!! But for now just a quick update from our 3 year check up for The Eat Study.
We went down to London last week and Cade and Mummy and Daddy had skin prick testing….along with general height, growth for C. No surprises I came back completely clear. However Cade is allergic to grass like Ayla but Daddy has a whole host of allergies!!! I am not surprised as he has severe eczema and I am a firm believer there is always a trigger. So he is also allergic to grass, also pollen, house mites (dust) and big bummer also dairy
In the evening when Ayla goes to bed we often break out the chocolate and ‘treats’…..so now it’s just me and Cade!! When Ayla went to gymnastics last week with Daddy, we dived straight into the Ben and Jerrys!!! I fear I am becoming a secret eater.
Luckily though…day to day eating is pretty much the same as we all generally follow an Ayla Friendly diet.
Ayla had a family party last weekend and Nana made up a batch of Ayla Friendly cup cakes specially for the occasion x x x
My new super food! Coconut Oil…..
I am in to smoothies at the moment…..and have been adding all the normal healthy things like frozen berries, banana, honey and more recently spirulina (green algae!). I usually use a base of soya or almond milk as I personally hate the taste of cows milk and obviously its just easier if we all have the same. I make a big jug and then share it out with the kids.
Recently I read about Coconut Oil and have been hunting for some. I brought a jar from Holland and Barratt so have started on it this week. For eczema it can be used both internally by adding to smoothies, cakes etc but it can also be used externally. Ayla has a little dry and sore patch under her mouth from licking (she has had this previously and it became infected). So I am know using the super oil on it the sore area. It spreads on her skin beautifully and much kinder for the face than steroid cream!
Coconut Oil has anti bacterial and anti viral properties as it contains lauric acid. And it is a ‘good’ fat. It is basically just pretty fabulous all around!
This is Ayla all ready for bed in her cotton sleep suits. For the first time in 3 years she stopped wearing them over the summer months. However the colder weather is back so we are slapping the cream on and then put the suits on which hold in the moisture for much longer. It also stops her PJs getting as creamy!
I guess it is quite time consuming and most 5 year olds can get ready for bed themselves but the effort is worth it.
For anyone reading this, we get them on prescription from the Doctors. So ask!! Ayla also wears the top under her clothing if she has a bad flare up as they are comfy on her skin
Why have I not thought of this before! SORBET!
I was out with Ayla today cutting through a big shopping complex heading to the theatre when Ayla’s eyes were drawn to the ice cream parlour! My initial thought was oh poor baby……then I saw ‘dairy free!’ So over we went to ask and not just the one choice but half a dozen sat in with the regular ice cream. I thought Ayla’s eyes would pop out of her head. She chose raspberry with sprinkles! Yum yum!
So now I will be looking for super yummy sorbets in the supermarkets. It is definitely getting easier to be wheat and dairy free!
So winter is approaching and the last few years have seen snow and real cold snaps! Brrrr and Grrrrr.
We really do not like the cold weather. The cotton suits are back and extra thick dollops of cream. But worst of all I can see Ayla’s skin getting more itchy and dry each week. I definitely have a better understanding now than when she was little, and I feel that at least during the summer we know that we have it pretty much under control so it’s 6 months of keeping on top things.
Now it’s time to get prepared. Order new cotton suits, cotton polo necks and make sure we have an endless supply of cream!
So I haven’t posted for ages again…sorry to anyone reading. But truth me told eczema has taken a real back seat in our lives. I barely notice that it is there lurking on the skin. Summer started late….probably didn’t see any sun until late June….but bam when it came it really came!!
In July we enjoyed some gorgeous hot weather which went on and on for a good few weeks. So I stripped Ayla off and applied just enough sunscreen to stop any burning and let the sun do its magic. Within a week Ayla’s skin was noticeably better and after 3 weeks he skin was silky smooth. To the point that even the teachers were commenting on her lovely skin. With the decent summer and a dose of salt water on a camping trip Ayla has the best skin I have seen on her since she was a babe in arms.
For the first time in three years Ayla is sleeping without her sleep suits I have been slapping on huge dollops of cream for years and years then putting tight suits on and all of a sudden we are down to just centraben and cotton pjs. Gettting ready for bed has become a whole lot quicker.
I know for some people with eczema the summer months can be awful but for us it works. The impact it has on Aylas skin, which has a knock on effect on life in general has even made me consider emigrating….not the only reason but it would difficult go on the pro list!
I have well and truely had enough of this cold cold cold weather. It feels like it has been a six month long winter. Not only does it mean we have spent little time outside, it has been mean mean mean on Ayla’s skin.
The lastest cold spell (March!!!) has really hit Ayla hard. Just when we should be thinking of stripping off and getting some fresh air Ayla has had a massive flare up. Probably the worst she has been for 2 years and has reduced me to tears.
It has not been like the flare ups of old though. Ever since Ayla has been dairy and wheat free she has pretty much been flare up free too. This flare up wasn’t all over but for the first time ever her poor little face has been soooo sore. She has had cracked skin under her ear lobes, an infected sore above her lip (where she has licked her dry lips, causing them to become dry and cracked…which then became infected) and eczema all along her hair line.
Added to this she had an infection to the eczema behind her knees from scratching at the dry skin. But thankfully after a few weeks hard work she is looking good again. This is what we did to clean it up!!!……
1) Emuvate on skin infection behind knees twice a day for two days.
2) Creaming up every two hours (luckily it was the weekend!!) and wearing of sleepsuits all day and night for two days.
3) Germolene cream on cracked skin behind knees after infection had gone to help healing process. Also used on ears.
4) Cold sore cream on lip to stop infection every hour for two days. Then normal cream as dry.
5) Anto-dandruff shampoo every other day/every three days. Relieves itching and helps with flaky skin.
It has been hard work…but I am sure like any parent reading this blog I would do anything to make Ayla’s eczema away!! So please hurry up warmer weather…we need some naked time!!
Sorry I have been away for soooo long. Been an eventful new year and I am glad January is over. Onwards and upwards is all I can say.
So Ayla was asking for her favourite ‘cheese’ today. We came about Buffalo Mozzarella a bit by accident really. We were at a County Fair and saw a stand selling Buffalo Ice-cream. So I let Ayla have a whole scoop (and we would wait to see what happened). Well that experience will stick with me forever. The first time she has ever chosen her own flavoured icecream (and all her cousins had the same) and she licked the whole tub clean. She LOVED it! I awaited the hives to appear…..they didn’t come!!
My Mum then suggested we try Buffalo Mozarella. We did…and again she was ok. So now it is a bit of a treat. We but wheat free pizza bases and Tesco Finest Buffalo Mozarella and Ayla gets to make her own pizza and gobble it all up!!!
Ayla couldn’t remember the name Buffalo Mozarella at first so we changed it to Gruffalo Cheese!!
Yum yum….worth a try for other dairy sufferers. Start teeny tiny.
It is Christmas Eve..Eve and it is beginning to feel a lot like Christmas. I have spent so much time (and money!!) making sure Ayla has lots of yummy ‘Ayla Friendly’ treats for Christmas, – there are biscuits, chocolates, vanilla shakes, crisps etc etc that I completely forgot myself and realised I had nothing in the fridge to even make myself a sandwich for work!!
Oh well….wine and chocolate it is then
Happy Christmas x x x